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Draft data management #28

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5f9efbb
draft of data management chapter
svteichman Jun 9, 2026
bd0c715
move privacy section, add learning objectives
svteichman Jun 18, 2026
d302733
updates to docs etc when working on ch 5
svteichman Jun 18, 2026
48213c2
Apply suggestions from code review
svteichman Jun 18, 2026
1d5cc95
Merge branch 'draft_data_management' of https://github.com/fhdsl/Clin…
svteichman Jun 18, 2026
8dff387
add note about considering institutional support when choosing data h…
svteichman Jun 18, 2026
af328f0
add note about how mainstream tools can be safe options, as opposed t…
svteichman Jun 18, 2026
e4b4dc1
add note about redcap's ability for data quality checks, and that it …
svteichman Jun 18, 2026
04ee3af
moving around note on privacy features of data tools, before giving s…
svteichman Jun 18, 2026
22e992d
add subsection on how to generate dummy data for testing
svteichman Jun 18, 2026
9bb8735
add note about refining surveys/case report forms from testing
svteichman Jun 18, 2026
a7ed3d7
add .gitignore back in, add docs and .Rproj.user folder
svteichman Jun 18, 2026
81015df
add terms to dictionary from spellcheck
svteichman Jun 22, 2026
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2 changes: 2 additions & 0 deletions .gitignore
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153 changes: 151 additions & 2 deletions 03-data_management.Rmd
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<meta charset="utf-8" />
<meta http-equiv="X-UA-Compatible" content="IE=edge" />
<title>Page not found | Clinical Data Analysis for Cancer Informatics</title>
<title>Page not found | Appendix I</title>
<meta name="description" content="Description about Course/Book." />
<meta name="generator" content="bookdown 0.46 and GitBook 2.6.7" />

<meta property="og:title" content="Page not found | Clinical Data Analysis for Cancer Informatics" />
<meta property="og:title" content="Page not found | Appendix I" />
<meta property="og:type" content="book" />

<meta property="og:description" content="Description about Course/Book." />


<meta name="twitter:card" content="summary" />
<meta name="twitter:title" content="Page not found | Clinical Data Analysis for Cancer Informatics" />
<meta name="twitter:title" content="Page not found | Appendix I" />

<meta name="twitter:description" content="Description about Course/Book." />

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<li class="chapter" data-level="5" data-path="clinical-data-management.html"><a href="clinical-data-management.html"><i class="fa fa-check"></i><b>5</b> Clinical Data Management</a>
<ul>
<li class="chapter" data-level="5.1" data-path="clinical-data-management.html"><a href="clinical-data-management.html#learning-objectives-3"><i class="fa fa-check"></i><b>5.1</b> Learning Objectives</a></li>
<li class="chapter" data-level="5.2" data-path="clinical-data-management.html"><a href="clinical-data-management.html#clinical-data-handling-tools"><i class="fa fa-check"></i><b>5.2</b> Clinical data handling tools</a></li>
<li class="chapter" data-level="5.3" data-path="clinical-data-management.html"><a href="clinical-data-management.html#importance-of-keeping-clinical-data-safe"><i class="fa fa-check"></i><b>5.3</b> Importance of keeping clinical data safe</a></li>
<li class="chapter" data-level="5.4" data-path="clinical-data-management.html"><a href="clinical-data-management.html#government-regulators"><i class="fa fa-check"></i><b>5.4</b> Government regulators</a></li>
<li class="chapter" data-level="5.5" data-path="clinical-data-management.html"><a href="clinical-data-management.html#documentation"><i class="fa fa-check"></i><b>5.5</b> Documentation</a></li>
<li class="chapter" data-level="5.6" data-path="clinical-data-management.html"><a href="clinical-data-management.html#conclusion-1"><i class="fa fa-check"></i><b>5.6</b> Conclusion</a></li>
<li class="chapter" data-level="5.2" data-path="clinical-data-management.html"><a href="clinical-data-management.html#clinical-data-handling-tools"><i class="fa fa-check"></i><b>5.2</b> Clinical data handling tools</a>
<ul>
<li class="chapter" data-level="5.2.1" data-path="clinical-data-management.html"><a href="clinical-data-management.html#clinical-data-handling"><i class="fa fa-check"></i><b>5.2.1</b> Clinical data handling</a></li>
<li class="chapter" data-level="5.2.2" data-path="clinical-data-management.html"><a href="clinical-data-management.html#selecting-clinical-data-handling-tools"><i class="fa fa-check"></i><b>5.2.2</b> Selecting clinical data handling tools</a></li>
<li class="chapter" data-level="5.2.3" data-path="clinical-data-management.html"><a href="clinical-data-management.html#testing-data-handling-tools"><i class="fa fa-check"></i><b>5.2.3</b> Testing data handling tools</a></li>
<li class="chapter" data-level="5.2.4" data-path="clinical-data-management.html"><a href="clinical-data-management.html#conclusion-1"><i class="fa fa-check"></i><b>5.2.4</b> Conclusion</a></li>
</ul></li>
<li class="chapter" data-level="5.3" data-path="clinical-data-management.html"><a href="clinical-data-management.html#privacy-considerations-for-clinical-data"><i class="fa fa-check"></i><b>5.3</b> Privacy considerations for clinical data</a></li>
<li class="chapter" data-level="5.4" data-path="clinical-data-management.html"><a href="clinical-data-management.html#government-regulators"><i class="fa fa-check"></i><b>5.4</b> Government regulators</a>
<ul>
<li class="chapter" data-level="5.4.1" data-path="clinical-data-management.html"><a href="clinical-data-management.html#health-insurance-portability-and-accountability-act-hipaa"><i class="fa fa-check"></i><b>5.4.1</b> Health Insurance Portability and Accountability Act (HIPAA)</a></li>
<li class="chapter" data-level="5.4.2" data-path="clinical-data-management.html"><a href="clinical-data-management.html#food-and-drug-administration-fda"><i class="fa fa-check"></i><b>5.4.2</b> Food and Drug Administration (FDA)</a></li>
<li class="chapter" data-level="5.4.3" data-path="clinical-data-management.html"><a href="clinical-data-management.html#general-data-protection-regulation-gdpr"><i class="fa fa-check"></i><b>5.4.3</b> General Data Protection Regulation (GDPR)</a></li>
<li class="chapter" data-level="5.4.4" data-path="clinical-data-management.html"><a href="clinical-data-management.html#honest-brokers"><i class="fa fa-check"></i><b>5.4.4</b> Honest brokers</a></li>
</ul></li>
<li class="chapter" data-level="5.5" data-path="clinical-data-management.html"><a href="clinical-data-management.html#documentation"><i class="fa fa-check"></i><b>5.5</b> Documentation</a>
<ul>
<li class="chapter" data-level="5.5.1" data-path="clinical-data-management.html"><a href="clinical-data-management.html#data-management-plan"><i class="fa fa-check"></i><b>5.5.1</b> Data Management Plan</a></li>
<li class="chapter" data-level="5.5.2" data-path="clinical-data-management.html"><a href="clinical-data-management.html#statistical-analysis-plan"><i class="fa fa-check"></i><b>5.5.2</b> Statistical Analysis Plan</a></li>
<li class="chapter" data-level="5.5.3" data-path="clinical-data-management.html"><a href="clinical-data-management.html#standard-operating-procedures"><i class="fa fa-check"></i><b>5.5.3</b> Standard Operating Procedures</a></li>
<li class="chapter" data-level="5.5.4" data-path="clinical-data-management.html"><a href="clinical-data-management.html#data-use-agreements"><i class="fa fa-check"></i><b>5.5.4</b> Data Use Agreements</a></li>
<li class="chapter" data-level="5.5.5" data-path="clinical-data-management.html"><a href="clinical-data-management.html#data-sharing-agreements"><i class="fa fa-check"></i><b>5.5.5</b> Data Sharing Agreements</a></li>
<li class="chapter" data-level="5.5.6" data-path="clinical-data-management.html"><a href="clinical-data-management.html#documentation-across-the-span-of-a-project"><i class="fa fa-check"></i><b>5.5.6</b> Documentation across the span of a project</a></li>
</ul></li>
<li class="chapter" data-level="5.6" data-path="clinical-data-management.html"><a href="clinical-data-management.html#conclusion-2"><i class="fa fa-check"></i><b>5.6</b> Conclusion</a></li>
</ul></li>
<li class="chapter" data-level="6" data-path="appendix-i-ontologies-vocabularies-taxonomies-and-standards.html"><a href="appendix-i-ontologies-vocabularies-taxonomies-and-standards.html"><i class="fa fa-check"></i><b>6</b> Appendix I: Ontologies, Vocabularies, Taxonomies, and Standards</a>
<ul>
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<div class="body-inner">
<div class="book-header" role="navigation">
<h1>
<i class="fa fa-circle-o-notch fa-spin"></i><a href="./">Clinical Data Analysis for Cancer Informatics</a>
<i class="fa fa-circle-o-notch fa-spin"></i><a href="./">Appendix I</a>
</h1>
</div>

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